make invisible illness visible.

raising awareness through shared stories, social content and illustration, for experiences that are regularly overlooked, doubted or misunderstood.

we are not invisible. our stories shouldn’t be either.

invisible illness is often treated as an individual problem to explain, justify and manage quietly. this project asks what could change if those experiences were gathered, witnessed and made part of public understanding.

shared stories may, with clear permission for each use, inform social media content, written pieces and illustrations by phoebe kathryn. each offers a way to start conversations and help people understand what living with invisible illness can mean.

the scope

invisible illness and dynamic disability

chronic migraine is the starting point for phoebe’s content and advocacy, while the wider project makes room for experiences across many under-recognised conditions.

the method

stories become understanding

personal accounts reveal patterns that statistics alone can miss: disbelief, unequal access, changing capacity and the work of appearing well.

the intention

recognition before resolution

the first aim is simple: to help people feel seen and to make the hidden effects of illness more difficult to ignore.

the project begins with listening.

read about shared stories